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Post by stratlady on May 26, 2007 15:16:19 GMT
One day earlier? ;D Well I am glad to hear this.
Good luck with today Simon. I hope all will go well.
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Robynn
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Post by Robynn on May 26, 2007 19:09:39 GMT
I work all day today, but will check back tonight and see if there's an update. I've got my fingers crossed! Give her a hug from us too, when you can!
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Post by simon on May 27, 2007 6:43:40 GMT
Alright guys, She is Awake!! They had to Wake her up early as she was trying to breathe by herself which wasn't good because she had breathing tubes in and she was essentially choking herself. It took a good 4 hours to wake her up, Considering the fact she was trying to breathe on her own, This was a long time.
She paniced when she woke up as she didn't have control of her arms and legs, This improved and she has full control over her body now . She's not very alert just yet or wasn't when I left, All she wants to do is sleep and is very weak, The doctor give her two or three days to be up walking.
The Operation was dubbed a sucess and they are confident that her seizures will not return...
YAY!!!!!!!!!!!!
Thanks Guys for all your thoughts and prayers
P.S I did tell Jus that you guys were all thinking of her and and she sorta smiled, and I did give her a hug robynn for you guys..
Simon
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Post by stratlady on May 27, 2007 17:10:29 GMT
Finally!!! She's awake and well!!! ;D
Wow. Thanks for the news Simon, this has so freaking made my day, I am so happy!!!!
;D ;D ;D
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Robynn
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Post by Robynn on May 27, 2007 18:42:33 GMT
yah...that made me cry just a bit. I'm so happy that things went well. If she panicked because she didn't have total control of her arms and legs, that means she's aware of what's going on around her and there's little, if any, brain damage. hoooooray!!! It's serious party time. I'll be a bit happier at work today.
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Post by snowwhite on May 29, 2007 10:27:59 GMT
Wow its so great that shes okay Made my day hearing that!!
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Robynn
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Post by Robynn on May 30, 2007 3:56:30 GMT
Got a message from Simom while I was asleep....
Session Start (pd2care@hotmail.com:Jussie): Tue May 29 16:37:34 2007 Jussie: Jus has developed a lung infection, She's back in intensive care, and on all the machines. At the moment she is not responding to the antibiotics. Can u please update FOI? I am just on my way back there,I've got more time off, i'll try and update when i can.
This isn't uncommon due to being on the breathing machines, but still, it's a setback.
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Post by snowwhite on May 30, 2007 19:02:28 GMT
im sure she'll work through it the worst is over now!
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Robynn
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Post by Robynn on May 31, 2007 0:29:15 GMT
we're praying....lung infections are common in those who lay down all the time, without being able to sit up at all. pnemonia can set in. that's the part that has me worried, since she's not responding to antibiotics. I'll wait for Simon's next IM and update when I get one.
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Post by stratlady on May 31, 2007 2:22:35 GMT
I'm worried...that doesn't sound to good. But at least, Jus is young and strong. And we'll keep praying for her. (be sure to tell her that Simon!)
I actually read this this morning, and during my final today, around question 32, I started thinking about this. So, I told God that he better do something for Jus, because right now, she needs Him and because she's a good girl and Emma and Simon needs her.
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Post by simon on May 31, 2007 14:37:38 GMT
Mary, I do hope that your marks didn't suffer... Jus wouldn't want that to happen because of her.
I'll admit i've never really been much of a godly person and i never pray, but the chaplain and I had a great chat, while Jus was in surgery. But i actually did pray last nite. I got home and was very down and couldn't sleep so i prayed, as i said it was a big thing for me.
I've come to realise i cannot control everything, and I really really want to. I can't help her, hold her, or trade places with her. It frustrates me, and the beeping is driving me insane.
Jus has remained the same hope fully i'll have some more substantial news shortly .Yes she is sick But she's come this far and We just need to find an antibiotic that works if not there's Steriods.. Which i've given them full permission to use if need be. In fact i've pretty much said whatever you have to do. do it! Just tell me where to sign.
Also I'm writing a Story for Epilepsy.com, And i just wanna know your thoughts?
If I'd Have Known
I remember the time down to the minute, That i was told my 20 year old fiancee had Epilepsy, She'd seized for the first time in almost 10 years. She was rushed to the hospital and Then i was told by her mother."She's got epilepsy Simon, She hadn't had a seizure since she was a child" I was in shock yes but it didn't change anything, She was pregnant at the time with a much hoped for son, Sadly she lost him, The next seizure she fell down in the hallway stairs and the shock of the fall, caused her to lose the Baby. The seizures became regular, almost 10 a day. Often in the presence of our daughter, who was one and bit at the time, She went into deep depression, None of the perscribed Medications were doing anything, The Seizures were just as intense, and just as frequent. She tried so hard to Stay strong but eventually sucummed to her demons, Becoming an Alcoholic and Drug abuser. She no longer had the desire to be a mother, or handle anything. Worked Full time and Looked after our daughter while she, drank and Used. This continued for 10 months..
was offered a Job Here in Hartford. CT, this meant moving from Australia, I told her i was going, and i was taking Our Daughter with or without her, and if she came she'd have to Face her epilepsy and Her Demons, She freaked out and Seized, I called the Paramedics and She was taken to the Hospital, she seized 4 times in 20min in the Ambulance ride, When she got there i enetered her into a treatment program. The thought of losing us must have woken her up 3 months later she had been sober for 2 months and on her meds, and We were ready to begin planning for our move, We got the okay to travel and informed the airlines of Her condition...Fortunatly the seizures were only petite mals for the two weeks we were travelling. The seizures continued and We agreed to Persue further treatment when we arrived in the states.
However once arriving in The US, Her epilepsy got worse Again now with 15 Seizures a day, One of them she'd fallen down two flights of stairs she was out for 6 hours before I found her, Several severe Grand mals continued, We consulted a specialist He told her she was a perfect candidate for surgery, She didn't hesitate, She agreed to the surgery, Only to find the insurance had found a loophole, she wasn't an american citizen, we'd have to front the bill for the surgery. We needed to either raise the money or wait until she was a citizen Thankfully a friend, who is a lawyer, took the petition of residence through the Courts and the application was fast tracked, Before we knew she'd gotten Residency. With two months to spare before the Surgery. Then the heartbreak occured, We Agreed to send out 2 year old Daughter to Australia to live with Her grandmother. After all neither of us would have been able to care for her, The day Emma left could very well have been the day i lost both of them, She Broke down at the airport, Yelling and Screaming, She hated me, She hated herself and Hated the fact there was nothing she could do, She cried all the way home and Refused to take meds, Seizing twice every half an hour, I had to call the Hospital, They sent police and Paramedics and A Phsycologist over to our house, With Coaxing she agreed to councilling and to take her meds, she could have very well fallen anywhere especially seized in the bath, which was where she was sitting.
That's all i got..
I've got the ending too " Which brings me to my question If I'd Have known our journey would have been as hard as this Would i have still done it?? Yes, I'd still be here.. I'd still be writing this. "
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Robynn
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Post by Robynn on May 31, 2007 17:08:11 GMT
It's really good, Simon. It'll bring a tear to every eye who reads it. We're all praying for you guys. *hugs*
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Post by stratlady on May 31, 2007 17:36:24 GMT
Okay that brougt to tears. One can really tell that it's your heart speaking Simon.
And that is really sad, everything that happened to both of you. What's amazing though is that you guys are still together after all of this. That's really beautiful.
And don't worry about my final. It should be fine. That's usually how I try to deal with stuff I worry about. I put them in the hand of God and then trust Him that things will turn out the way they should, because God knows what's best. After that, I am able to be more at peace with things.
Now, that's probably an easier thing to say, than to do, but really, that's the only good way I've found to deal with stuff I can't control. And to tell you the truth, I'd probably have a harder time doing that if I were you or Jus. I can only imagine how hard it is for you both, and well, that ain't pretty.
And as Robyn said, we'll keep on praying.
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Post by Robynn on Jun 3, 2007 17:23:30 GMT
I had this offlne when I got up this morning from Simon....
"Hey, Just on my way back to the hospital, Jus is doing Okay. They've started her on steriods and the antibiotics have started to work, She did get Pneumonia, But something is working finally, She will not leave intensive care until her lungs are strong. She's still not very alert, But she acknowledges when i walk in now."
Thought I'd let everyone know....but now I have to get ready for work. I overslept!
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Post by unicorn07 on Jun 4, 2007 3:39:54 GMT
Glad to hear the antibiotics are working!
Thanks for keep us all updated, I hope Jussie is back to herself soon!!
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